Realizing responsibility. Institutional routines, criticalintervention, and the“big”questions in the controversyover non-invasive prenatal testing in Germany

verfasst von

Kathrin Braun, Sabine Könninger

Abstract

NIPT has become a matter of controversy in Germany over the past years, there is now a widespread concern that it raises fundamental social and ethical questions. Starting from the assumption that responsible governance requires governance actors to address these questions, the article examines how the main governance actors realized their responsibility in the sense of conceiving and performing it. Building on the pragmatic sociology of critique, we study how actors are doing responsibility within a given institutional and political context. We show that critical interventions disrupted institutional routines and caused governance actors to struggle with conflicting commitments of complying with institutional rules and exercising responsibility by taking social and ethical considerations into account. Whereas these conflicting commitments posed a predicament for political decision-makers, who solved it through shifting responsibility for social and ethical issues elsewhere, there was no such predicament for the producers; for them, routine and responsibility converged.

Organisationseinheit(en)

Institut für Politikwissenschaft

Externe Organisation(en)

Universität Stuttgart

Typ

Artikel

Journal

New genetics and society

Band

37

Seiten

248-267

Anzahl der Seiten

20

ISSN

1463-6778

Publikationsdatum

26.07.2018

Publikationsstatus

Elektronisch veröffentlicht (E-Pub)

Peer-reviewed

Ja

ASJC Scopus Sachgebiete

Gesundheit (Sozialwissenschaften), Genetik, Health policy, Probleme, Ethik und rechtliche Aspekte

Ziele für nachhaltige Entwicklung

SDG 3 – Gute Gesundheit und Wohlergehen

Elektronische Version(en)

https://doi.org/10.1080/14636778.2018.1495555 (Zugang: Geschlossen)